Dementia is an unmercifully debilitating condition. It is the most misunderstood condition in the world. And yet, it is extremely common.
Here are some facts that may help you understand it:
- Dementia is the name for a group of symptoms caused by disorders that affect the brain. There are many diseases that cause dementia. Alzheimer’s is the most common and the number one feared diagnosis.
- Every 67 seconds someone is diagnosed with Alzheimer’s disease. This does not include other dementia related diseases.
- About one out of 5 are at risk of developing Alzheimer’s disease.
- Alzheimer’s is now the 3rd leading cause of death..
- There is no prevention, slowing the progression or cure.
- There are no survivors.
- This we cannot fix.
There is a stigma for those afflicted with dementia. Many consider them a lost cause. But on the contrary, there is hope. With education and resources a productive loving lifestyle is achievable.
We have 17 years of experience at Mindful Dementia Stories. My hope is that sharing this knowledge will help someone. We can help navigate your journey. Here are some real world examples, drawn from our personal experiences..
A young woman found out her mother and aunt both have Alzheimer’s. She felt alone and lost. She felt exasperated by the power the disease held over her loved ones. And her. She had no idea what to do or where to begin. But somehow she found us.
She reached out to us.
And we reached back.
She began sharing her fears.
Through “conversation” online, trust was established. Bridges began to be built, and a plan was constructed. We were humbled when we received her message, posted below:
“See I knew nothing about plans, in case something goes wrong, I’m just prodding along taking one day at a time. Thank you, I will talk to my sis when finished work and set some plans out xx I don’t know what I’d do without your advice.“
I received a phone call from a friend. Someone was in crisis. She was overwhelmed and panicking. I was asked if I could help. Without hesitation, I asked them to share my phone number.
Within minutes she called. She began explaining the situation. The hospital was kicking out her mother with advanced Alzheimer’s. They were pressuring her to care for her bedridden mother in her home. She was not financially or physically prepared to safely comply. I advised to seek legal counsel and gave her resources. She now had a plan. The outcome was more reasonable. Her mother would be safely released to a facility close to her home. The tears stopped, the panic was gone.
A long time friend wanted to be prepared for her mom’s morning care plan meeting. She recently noticed her mom’s tongue was moving constantly. Her hands had uncontrollable muscle movement. The facility said it was normal. This did not sit right with her. She asked me what could cause this. From my experience it sounded like a side effect from a medication. It is a serious condition, Tardive Dyskinesia. If not taken off the medication it will become permanent. This was an invaluable insight for her. She entered the meeting much better prepared. Her outcome,
” Mom is doing well, guess what? With the right care she has not needed the psych hospital at all!! Surprise! Her Tardive Dyskinesia symptoms are gone. That goodness! She recognizes me the minute I walk through the door. Yet she still is in dementia mode.”
These are just a few of Mindful Dementia Stories that we want to share with you.
Please feel free to contact us. We would be honored.